Tag Archives: cystic fibrosis

First Transplantiversary

One year ago on February 10th, 2015, I received a phone call that changed my life forever. My lung transplant coordinator, Kelly, called to ask if I was ready to have a transplant that very day, and thus I embarked … Continue reading

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Meeting Connie’s Family

This past Friday, December 11th, was an important milestone in my life. I met my donor Connie’s husband and mom, Dan and Sandy. Though we’d been in touch via phone and letters, Friday was our first face-to-face visit. This is … Continue reading

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The Lung Transplant Diary

The Lung Transplant Diary When I last wrote, I was on the lung transplant list, but I can’t really say that I was waiting for lungs. I wasn’t expecting to be called for many months. Before I dive into the … Continue reading

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Getting Listed

Before I get to the good news, I think it’s crucial to write about the last few months and what took place in that time. This is the much abridged version of events, however, seeing that I need to get … Continue reading

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CF Awareness in May

May is Cystic Fibrosis Awareness Month. This is wonderful news; cystic fibrosis needs to be brought into the spotlight in order to attract more donors and fund more research. I’m somewhat stuck in a paradox when it comes to my … Continue reading

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I Hate CF

Sometimes I can almost forget that I have cystic fibrosis. Almost. Then a bout of pneumonia, or a lung bleed, or sinusitis, for example, lands me in the hospital and the disease crashes down around me all over again. This … Continue reading

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Fresh Air

  This is my first valid attempt to write something that doesn’t make you want to crawl in bed and cry. When I was in my adolescence, poetry was an outlet for my depression and almost all of what I … Continue reading

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